Thursday, April 3, 2014

Learning to balance...

Found out my big girl isn't as crooked as we thought!
 
Met with the Orthopedic Surgeon who is also my nephew's doc, got some x-rays, some scans and the results are in...
Leg length is only 3mm off, her knees only twist in slightly and it looks like she is done growing in her legs!
I still need results from the growth plate in her hand to see if she is really tapering off, but I have to wait for those for a bit.
Hoping that she is about done growing so there isn't a more noticeable difference in her face.
 
We have a physical therapy evaluation coming up to give her some extra stability with the knock knee-ness and Asperger's eval over the summer...
probably one for myself as well...
I told her that there is a good chance that I have Asperger's too...and that if I don't, I am definitely peeking over the fence...if she gets a diagnosis, I told her I would get tested too and we could get some t-shirts that say "I have Asperger's - what's your problem?!"
It would explain A LOT about my life and the way I view the world.
 
The Geneticist wants to do a genetic study on the family since we have 5 confirmed cases of the skeletal abnormality here in the area and then we can screen for the 4 little ones instead of waiting for puberty.  Can't tell if my little one will be pissed if she has it or pissed if she doesn't and feels left out...
 
I am just going to grab on to the kids when they will let me and love on them as much as I can.  Support my husband as often as I can, even though I want to throttle him half the time...
I tell most people I have three children...
 
Not sure if I am approaching a mid-life crisis, in the middle of one or finally just figuring out life a little bit more each day, but I am ready to start letting these guys start taking care of themselves a little bit and me taking care of them a little less...can you say control freak?!  I think you can!
 
It's time to let me take care of myself a little more...
 
This is not where I thought I would be in life, not with my current struggles...self induced, imaginary and real.  But what I have realized is that I am the only one that can truly change anything.  I can lead by example, I can communicate more clearly, but I am done waiting for everyone else to get in the car...mommy said it's time to go.
Someone else can be mommy a bit.
(and in the hubby's defense, he has been stepping it up a bit more)
 


Thursday, March 20, 2014

There once was a crooked girl who lived in a straight world....

Well, it's official...
My oldest is lopsided
:(
 
Not the end of the world.
She has more testing to do and an appointment with my nephew's orthopedic surgeon in a couple of weeks.
We need to see if her knock-knee-ness comes from ligaments around the knee on the outside being looser than the ligaments on the inside and drawing the knees in or if it is from her bones actually twisting in.
The first option involves PT, the second, potential surgery.
There really isn't anything we can do about her face except pray it isn't too severe and start saving for plastic surgery and bone grafts.
 
The geneticist had a field day when she realized that there are 5 official, 1 potential and 5 yet to be discovered "victims" and is trying to see if Children's Hospital will authorize genetic testing on the fan-damily.
If she gets the ok, we could see if my youngest is just waiting for puberty to hit before she changes or if she dodged the bullet so to speak. 
 
Next stop Asperger's...


Wednesday, February 12, 2014

Getting it all out...and wishing it would go away...

My problems compared to others are pretty small...
but they are mine
and
they suck
.

My oldest is getting ready to go on a field trip across the county to D.C. which by itself is making me nervous, it's just that when she gets back her world is probably going to majorly change...
 and in more than one way.

Way #1
we are having her evaluated for Asperger's
She has always been immature and impulsive, but now that she and her peers and falling headfirst into puberty, the gap is becoming wider and her uniqueness more apparent.
I am having her evaluated so that I can make sure all the resources that are available are made accessible to her.

Way #2
A genetic anomaly for an asymmetrical skeleton that makes itself apparent during puberty.
We have an appointment with my nephew's geneticist in March.
We need to see how much of her body is being effected and get a referral to an orthopedic doctor to see if her knees are showing the same juju that her cousin's and dad's do...I want to push her to her own personal limits, but do not want her held to the same standards as her peers if they are too physically challenging for her or could cause her knee to dislocate.  We had noticed that her gait was off and she is a bit knock kneed, but didn't think it was the skeletal thing until we looked at her face.

So, we get to tell her, hey your brain doesn't process the way everyone else's does, but on the bright side, we will know why everyone thinks that you are weird...and by the way your face is starting to get call catty-wompus and we aren't sure how off center you will end up, but we can start saving for your facial reconstruction surgery now...you can have a head full of titanium like your Aunt!


The upside is that she doesn't think like a "normal" 14 year old right now and doesn't really care how she looks, but right now doesn't realize that her face is changing...hell, we didn't even notice it until the other day.

I hope and pray that her trip to D.C. is incredible and can become a "Happy Place" for her to go to when the cards she has been dealt start to bring her down.... 

Friday, January 17, 2014

While you were out...

The hubby is headed out of town for a the weekend to do a 1/2 Marathon
and I am going for a Marathon size surprise make-over on the house...

The first week of the year I organized both girls' closets...


I would show a pic, but experiencing technical difficulties...


Knowing that I am going to overhaul some things, I have let this place go...it looks like a bad episode of cops in here...it's pretty bad...and I grew up in a trailer park...I've seen bad!


I am going to shift some things on the walls
complete the gallery wall at the bottom of the stairs
get unused furniture out of the teenager's room
paint a dresser I now have placed under the stairs
hook up a new phone system
trailer park engineer 2 queens size quilts into one cal-king
sort out and purge my 4 giant boxes of "Stuff"
New blinds in the little one's balcony door
Install cork board art area on the back of her bedroom door
and general putting away of things that haven't been put away for the past two weeks


:)


Hope I can pull this off!






Thursday, November 7, 2013

Things I learned on the mountain...

Grabbed the kiddos last week and headed for the hills.
Literally!
We had a family vacation at Mammoth Lakes
 
: )
 
Here are a few things that I learned...
 
1.  My hubby drives fast, but he is a badass and got us 400 miles in 6 hours.
(not a whole lot of traffic on the San Diego freeways at 4 am on a Sunday)
 
2.  20-35 mph winds with 60 mph gust will take the pinecones right off of a tree and slam them against the condo.
 
3.  Snow is awesome!  Especially when the hubby already went to the store and local brewery for beer when it was only windy.
 
4.  Kids raised at sea-level can be endlessly entertained by snow.
 
5.  I learned how to build a fire...in the fireplace of course.
 
6.  I waste too much food down here...so much more compelled to eat leftovers when the alternative involves driving on an icy road.  No jumping in the car and heading to a chain restaurant or grocery store.
 
7.  I like having only the basic cables channels...there were a ton of channel on the tv but nothing good on.
 
8.  I can read 5 books in 7 days.
 
9.  I am obscenely out of shape!  Being mostly sedentary, while being 44 and at 7,800 ft is not a good combination, but has motivated me to get up off my fat ass!
 
 


Friday, August 30, 2013

BUT I SAID I'M SORRY...REALLY, REALLY SORRY!!!!!

It is a hope of mine that my seven year old will one day soon realize that screaming "I'm Sorry" at the top of her lungs does not an apology make
I hope she also learns that some things actually ARE her fault - and very rarely her sister's
And that she will talk to us with respect
She will not raise her voice and
she will not stomp her feet when she heads up to her room
I also hope that she figures out that when I say go to your room - that isn't the best time to ask for another chance...because she has already had 2...we go the baseball rout with 3 strikes in this house.
I have no idea where some of this behavior comes from all of the sudden...
I think she is emulating her 13 year old sister...
so that means in our house we have
a 7 year old going on 13
a real 13 year old
a dad who hates his job and works too many hours
and a peri-menopausal mom that just went back to work
oh, yeah...school stated back this week too

Sunday, August 25, 2013

Almost there...

In the final stretch of Back to School prep...
Living room - clean
Bathrooms - clean
Laundry room - clean
Kitchen - mostly clean and geared up for some baking this afternoon
going to try an bake ahead and freeze some "on the go" type breakfast-y things since I know were are going to be dragging our asses the first couple of weeks
Teenager's room -clean
2nd grader's room - work in progress
she has been right there with me directing me what to get rid of for a big ol' yard sale at my friend's house in two weeks...she has a better location : )
More room for her and a couple of bucks in the meantime...everything that doesn't sell will be dropped off at the thrift store on the way home.
 
Will be headed back to work tomorrow as well...been working here are there as I can to get some positive cash flow, flowing...
 
combined with the whole house purge for the yard sale...maybe we can take a little vacation during the 1st quarter break...
I don't mind making a couple of bucks on our old stuff, but at this point I just want to get unused/unloved stuff out of our house!
Our place is 1,323 sf and it can't get any bigger since we live in a townhouse community with an H.O.A. and of course we live one of the only levels (there are 5) that don't have garages!  How can levels 1,2 and 5 have garages, but not 3 & 4?  I am tired of being an expert in shoving 10 pounds of crap in a 5 pound bag.  If we had 1 more bedroom or an actual garage, it would be a little different...maybe...we would probably just buy more crap.